{"id":1133,"date":"2022-03-05T00:26:49","date_gmt":"2022-03-04T23:26:49","guid":{"rendered":"http:\/\/epilepsies-aege.fr\/?page_id=1133"},"modified":"2023-11-14T15:06:05","modified_gmt":"2023-11-14T14:06:05","slug":"medias-2","status":"publish","type":"page","link":"https:\/\/epilepsies-aege.fr\/index.php\/medias-2\/","title":{"rendered":"M\u00e9dias"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ fullwidth=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_fullwidth_header logo_image_url=\u00a0\u00bbhttps:\/\/epilepsies-aege.fr\/wp-content\/uploads\/2020\/01\/aege-logo-web-1.jpg\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_button_one=\u00a0\u00bbon\u00a0\u00bb button_one_use_icon=\u00a0\u00bboff\u00a0\u00bb custom_margin=\u00a0\u00bb-50px||-37px|-492px|false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.16″ min_height=\u00a0\u00bb1011px\u00a0\u00bb custom_margin=\u00a0\u00bb||-31px|||\u00a0\u00bb custom_padding=\u00a0\u00bb||35px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16″ custom_margin=\u00a0\u00bb-30px|auto|-149px|auto||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4″ text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162″ header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb min_height=\u00a0\u00bb79px\u00a0\u00bb custom_margin=\u00a0\u00bb||42px|||\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb header_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb header_font_size_phone=\u00a0\u00bb40px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb inline_fonts=\u00a0\u00bbAlef\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Le t\u00e9moignage d’Audrey,<\/span><\/span><\/h1>\n

\u00e9pileptique pharmaco-r\u00e9sistante<\/span><\/span><\/h1>\n

<\/strong><\/span><\/p>\n

Retrouvez son t\u00e9moignage sur Facebook, sous forme de courts \u00e9pisodes :<\/strong><\/span><\/p>\n

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Teaser \u00ab\u00a0\u00c9pilepsie\u00a0\u00bb [Novembre 2023 – In Vivo]<\/span><\/span><\/a><\/strong><\/span><\/span><\/p>\n

Episode 1 : La neurologie pour aider les \u00e9pileptiques<\/span><\/b><\/a>
Episode 2 : Pose d’\u00e9lectrodes au <\/b>c\u0153ur<\/b> du cerveau<\/b><\/a><\/span><\/span><\/p>\n<\/blockquote>\n

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[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.16″ text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162″ header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb min_height=\u00a0\u00bb79px\u00a0\u00bb custom_margin=\u00a0\u00bb||42px|||\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb header_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb header_font_size_phone=\u00a0\u00bb40px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb inline_fonts=\u00a0\u00bbAlef\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Bibliographie sur l’\u00e9pilepsie<\/span><\/h1>\n

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[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.17.4″ custom_margin=\u00a0\u00bb-30px|165px|-149px|auto||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.4″ text_font=\u00a0\u00bbArial||||||||\u00a0\u00bb text_font_size=\u00a0\u00bb23px\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162″ header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb width=\u00a0\u00bb100%\u00a0\u00bb custom_margin=\u00a0\u00bb15px|-58px|27px|||\u00a0\u00bb custom_padding=\u00a0\u00bb0px||37px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

De l’ombre \u00e0 la lumi\u00e8re, et ma vie s’\u00e9claire : <\/span><\/strong><\/span>un t\u00e9moignage de C\u00f4me Hoppenot
Parution : 11\/02\/2021<\/span><\/span><\/strong><\/p>\n

\"\"<\/a><\/span><\/span><\/strong><\/p>\n

<\/span><\/span><\/strong>Description de l’ouvrage<\/strong><\/p>\n

En ce printemps 2002, notre vie se d\u00e9roule tranquillement au sein de notre famille tr\u00e8s unie et pleine d’amour. Et soudain, Cl\u00e9ment, notre troisi\u00e8me enfant alors \u00e2g\u00e9 de 9 ans, en bonne sant\u00e9 et plein de vie, sombre \u00e0 la suite d’une simple fi\u00e8vre dans une enc\u00e9phalopathie \u00e9pileptique aigu\u00eb. Apr\u00e8s avoir \u00e9t\u00e9 sauv\u00e9 de la mort, Cl\u00e9ment continue \u00e0 faire de nombreuses crises d’\u00e9pilepsie, plus d’une dizaine par mois.
Ces crises d\u00e9truisent tout sur leur passage et laissent derri\u00e8re elles souffrances et d\u00e9solation. Comment survivre \u00e0 ce tsunami ? Comment vivre avec l’\u00e9pilepsie ? En France, pr\u00e8s de six cent mille personnes sont \u00e9pileptiques, un tiers est pharmaco-r\u00e9sistant. Ils sont cinquante millions dans le monde.<\/span><\/p>\n

L’auteur<\/strong><\/span><\/p>\n

C\u00f4me Hoppenot est \u00e2g\u00e9 de 58 ans, mari\u00e9 et p\u00e8re de quatre enfants. La vie n’a pas toujours \u00e9t\u00e9 tendre avec lui, apr\u00e8s les d\u00e9parts brutaux et tr\u00e8s pr\u00e9coces de ses parents et de son fr\u00e8re ain\u00e9.
\u00c0 l’\u00e2ge de 9 ans, Cl\u00e9ment, son troisi\u00e8me enfant, est touch\u00e9 par l’\u00e9pilepsie – une maladie cach\u00e9e, sournoise et destructrice – qui finit par l’emporter \u00e0 l’\u00e2ge de 24 ans apr\u00e8s de longues ann\u00e9es de combat quotidien.
Aujourd’hui, il oeuvre pour que l’\u00e9pilepsie soit reconnue grande cause nationale et passe ainsi de l’ombre \u00e0 la lumi\u00e8re. Ce livre est une premi\u00e8re \u00e9tape dans ce combat qu’il souhaite mener afin de faire connaitre cette maladie, pour Cl\u00e9ment et pour tous ceux qui sont touch\u00e9s par ce mal et leurs familles.<\/p>\n

Un Arc-en-ciel apr\u00e8s la Pluie :<\/span><\/strong>\u00a0d’Adel Bounif, une bande dessin\u00e9e pour les enfants (et pour les parents !)
Parution : 26\/01\/2022
BD disponible aupr\u00e8s du si\u00e8ge de l’Association AEGE. Veuillez nous contacter pour plus d’informations.<\/p>\n

Extrait de l’ouvrage<\/b><\/span><\/p>\n

\"\"<\/a>\u00ab J\u2019\u00e9cris parce que c\u2019est ma mission.<\/span><\/span>
J\u2019\u00e9cris pour faire de la sensibilisation.<\/span>
J\u2019\u00e9cris pour vous donner le frisson.<\/span>
J\u2019\u00e9cris pour vous transmettre mes \u00e9motions.<\/span>
J\u2019\u00e9cris pour faire passer un message.<\/span>
J\u2019\u00e9cris pour qu\u2019on en parle davantage.<\/span>
J\u2019\u00e9cris pour qu\u2019on parle de cette maladie.<\/span>
J\u2019\u00e9cris pour mettre en lumi\u00e8re l\u2019\u00e9pilepsie. \u00bb<\/span><\/p>\n

<\/span><\/p>\n

Auteur<\/b><\/p>\n

Adel Bounif est le papa de Manel, une petite fille qui souffre du syndrome de Dravet, une forme d\u2019\u00e9pilepsie rare et s\u00e9v\u00e8re d\u2019origine g\u00e9n\u00e9tique et incurable. Lui et son \u00e9pouse vivent au rythme de l\u2019\u00e9volution des maux de leur fille. Ils sont pass\u00e9s par des phases de tristesse, d\u2019abattement, d\u2019incompr\u00e9hension mais ils n\u2019ont jamais perdu espoir. Par le biais de ses actions de sensibilisation en tant que p\u00e8re et b\u00e9n\u00e9vole, Adel cherche \u00e0 promouvoir la recherche et \u00e0 sensibiliser les pouvoirs publics et les m\u00e9dias pour un meilleur diagnostic et une prise en charge adapt\u00e9e. Afin de toucher encore plus largement et de prolonger son combat pour sa fille et pour toutes les personnes atteintes d\u2019\u00e9pilepsie, il d\u00e9cide d\u2019utiliser les moyens qui sont les siens: sa passion pour l\u2019\u00e9criture qui lui permet de sensibiliser les gens autrement en mettant des mots sur les maux.<\/span>
<\/b><\/p>\n

<\/span><\/p>\n

J’apprends ce qu’est l’\u00e9pilepsie : <\/span><\/strong><\/span>un livre interactif pour enfants
Parution : 2012\u00a0<\/span><\/span><\/strong><\/p>\n

\"Comprendre<\/strong><\/a>Description de l’ouvrage<\/strong><\/strong><\/p>\n

J\u2019apprends ce qu\u2019est l\u2019\u00e9pilepsie<\/strong><\/a><\/span><\/span> est une brochure faisant partie d\u2019une s\u00e9rie consacr\u00e9e \u00e0 l\u2019\u00e9pilepsie. Il est possible de communiquer avec Edmonton Epilepsy Association pour les versions\u00a0<\/span>anglaises et \u00c9pilepsie Montr\u00e9al M\u00e9tropolitain pour les versions fran\u00e7aises.
Cette brochure vise \u00e0 renseigner le public sur l\u2019\u00e9pilepsie. Elle ne contient pas de conseils m\u00e9dicaux ; les personnes ayant l\u2019\u00e9pilepsie ne devraient pas modifier leur traitement ou leurs activit\u00e9s sur la base de l\u2019information\u00a0<\/span>qu\u2019elle contient sans en parler d\u2019abord \u00e0 leur m\u00e9decin.<\/p>\n

Les auteurs<\/strong><\/span><\/strong><\/p>\n

Une \u00e9quipe compos\u00e9e de docteur(e)s, d\u2019infirmier(\u00e8re)s et de personnes ayant l\u2019\u00e9pilepsie ainsi que de leur famille ont contribu\u00e9 \u00e0 la cr\u00e9ation de cette brochure.<\/p>\n

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Prenons contact !<\/span><\/h1>\n

Adh\u00e9rer \u00e0 l’association, demander de l’aide ou des conseils, trouver une \u00e9coute : nous sommes \u00e0 votre service.\u00a0\u00a0<\/span><\/p>\n

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Route Nationale 4<\/span>
54200\u00a0Dommartin-l\u00e8s-Toul<\/span><\/p>\n

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Le t\u00e9moignage d’Audrey, \u00e9pileptique pharmaco-r\u00e9sistante Retrouvez son t\u00e9moignage sur Facebook, sous forme de courts \u00e9pisodes : Teaser \u00ab\u00a0\u00c9pilepsie\u00a0\u00bb [Novembre 2023 – In Vivo] Episode 1 : La neurologie pour aider les \u00e9pileptiquesEpisode 2 : Pose d’\u00e9lectrodes au c\u0153ur du cerveau Bibliographie sur l’\u00e9pilepsie De l’ombre \u00e0 la lumi\u00e8re, et ma vie s’\u00e9claire : un t\u00e9moignage […]<\/p>\n","protected":false},"author":1,"featured_media":1404,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\n\n\n

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